Social Media Support Groups

     

Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK https://www.facebook.com/CMVAction

CMV Mommies https://www.facebook.com/groups/218264801533244/

CMV Family Support https://www.facebook.com/groups/828342997176100/

Supporting UK CMV families https://www.facebook.com/groups/372198926159/

CMV Friends and Family US https://www.facebook.com/groups/417930608257146/

CMV Advocacy Group USA https://www.facebook.com/groups/111579365608685/?fref=ts

Cortical Visual Impairment https://www.facebook.com/groups/169027052659/

Polymicrogyria Family Support UK https://www.facebook.com/groups/344031389038023/

PMG Awareness Organisation USA https://www.facebook.com/groups/PMGawareness/

CMV Polish group      https://www.facebook.com/groups/1012619822134426/?__mref=message_bubble

CMV Families Ireland   https://www.facebook.com/groups/256608334755554

Israel CMV Support   https://www.facebook.com/groups/175740509473286/

 

Social Media Information and equipment groups

congenital CMV news      https://www.facebook.com/search/top/?q=congenital%20cmv%20     

UK DLA Parent Sharing  https://www.facebook.com/groups/141964685818509/

For sale preloved special needs equipment  https://www.facebook.com/groups/100310213409356/

Special needs equipment Buy Sell Swap    https://www.facebook.com/groups/SNEUK/

Fred Storey Super Saver Page  https://www.facebook.com/groups/433614973384226/

Children’s DLA discount tips  https://www.facebook.com/groups/28639938907/

     

Our Stories

Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the... Read more
Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness... Read more

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