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CMV Action (formerly the UK Congenital CMV Association), has been supporting families and raising awareness since 1986, meaning that  in 2011, we are 25 years old! To celebrate, we have relaunched the website with a new look, a new name and a new logo.

One thing that will not change however, is our commitment to raising much-needed...

European Congenital Cytomegalovirus Initiative:
The European Congenital CMV Initiative (E.C.C.I.) is a network of professionals based throughout Europe with a united interest in congenital cytomegalovirus (CMV) infection. The group is composed of virologists, epidemiologists,...
At the moment the main treatment available for congenital CMV  is Ganciclovir. However it is an invasive treatment for a newborn baby (it is administered via intraveinous drip), and in some cases it can cause adverse effects. Also, Ganciclovir treatment must be started before a baby is 4 weeks old, leaving a very small window  of...
On Tuesday 23rd August Little Jack Horners Day Nursery in Etwall, Derbyshire held a Big Pants Day to raise funds.    Children attending the nursery had a fun day participating in sports activities and games. They decorated a huge pair of pants and invited all parents to attend...
On 29th July 2011, on a five-a-side football pitch in Reading a truly incredible feat of indurence kicked off.  Challenge:42 was a Guiness World Record attempt at the longest ever 5-aside match. .  The record had previously been set at a whopping 40 hours in Newcastle in May 2011 .  To qualify the match had to be played between only 2 teams, each...
On Saturday 25th June at 6am a minibus carrying 6 supporters of CMV Action set off from Hartlepool to the highlands of Scotland in order to get to the foot of Ben Nevis. Over the course of the weekend the friends and family of children affected by CMV completed the National 3 peaks challenge to raise funds for CMV Action. Mark Lomas,...
Raising awareness of Congenital CMV - a leading cause of childhood disability. Providing support and advice for families affected. CMV action is currently under construction, but will be up and running in the near future.Please come back soon. From the CMV Action team.

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Our Stories

Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up... Read more
Elliot_CMV
This is my story of the effects of CMV and little boy Elliot.  I was 16 and pregnant, everything seemed to be going well, apart from being young and scared... 29 + weeks I... Read more

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