Our Stories

     
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Renae_Donald_1
My pregnancy was fine up until 20 weeks when I went for my ultrasound.  They noticed there was no fluid around my baby and I had actually lost my waters at 18 weeks pregnant. Not knowing what the problem was, they began all the tests which all came back fine.  Days went on been monitored every day, consultants telling me not to hope...
Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up to special care to be checked over, then was brought back to me as she was fine. The following day she had her newborn hearing screening, which she failed in...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
Finley-and-Harley-cmv
My name is Julie Anne Stansfield and this is my story of when and how CMV changed my life. On the 12th February 2010, I found out I was pregnant, it seemed like a natural progression having been married for 8 months and we always wanted a family. We were surprised it happened so quickly but we were over the moon. We kept it quiet only telling...
My name is Amanda and I’m 36 years old.   After 3 years of trying for a baby through 2 rounds of IVF, I conceived twins.  At 5 weeks I broke out in a rash all over my arms and legs. Doctors kept telling me it's allergy. I spent days at the A&E and finally my GP ordered a blood test to check. Following weeks of investigations, I...

Pages

     

Our Stories

Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing screening test... Read more
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and... Read more

Latest Events

Registered charity no: 1171773