Our Stories

     
  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply...
When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no change in my baby's growth scans and that I was going to be induced. Rubie May was not growing and was distressed in the womb. Rubie May was born 4 weeks premature, weighing only...
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...
Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and was very nearly a c section delivery. I went into early labour due to an infection.  He was born with the petechial rash which we were told was because...
My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I need more car...
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...

Pages

     

Our Stories

Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home... Read more
Joshua_newborn_CMV
When our youngest son was born in 2001, apart from a little jaundice he seemed 'normal'. It was only as time passed and developmental milestones were not reached, that concerns began. He... Read more

Latest Events

Registered charity no: 1171773